Canadian Congenital Heart Alliance

#CHDAdvocacy

heart, heart defect, heart disease, congenital heart disease, congenital heart defect, OHS, #ohs, CHD, #CHD, heart health, education, CHD advocacy, CHD education, CHD awareness, heart disease, cardiopathie congenitale

FR

The Canadian Congenital Heart Alliance (CCHA) is looking for its next generation of leaders to fill critical volunteer positions on our national Board of Directors. This elected group supports the work of CCHA and provides mission-based leadership and strategic governance.  We believe that a highly effective Board includes members from across Canada from many walks of life and that this diversity helps to best guide the overall strategic management and stewardship of the Foundation.  The CCHA’s Nominating Committee needs your help to identify Board candidates. We are looking for committed...

It's Heart Month image with hands raised for Congenital Heart Disease Awareness #CHD #HeartMonth #1in100 #MoisduCoeur #cardiopathiecongenitale #heartdisease #heartdefect

February is Heart Month! CCHA is so excited to bring you a month full of events, announcements, and most importantly awareness. Raise your hand if you will join us in raising CHD Awareness in support of over 250,000 Canadians living with Congenital Heart Disease.

****************

C'est l'image du mois du cœur avec les mains levées pour la sensibilisation aux maladies cardiaques congénitales #CHD #HeartMonth #1in100 #MoisduCoeur #cardiopathiecongenitale #heartdisease #cardiopathie #heartdefect malformation cardiaque

Février est le mois du cœur ! Le CCHA est ravi de vous offrir un mois rempli d'événements, d'annonces et, surtout, de sensibilisation. Levez la main si vous vous joignez à nous pour sensibiliser la population aux cardiopathies congénitales afin de soutenir plus de 250,000 Canadiens vivant avec une cardiopathie...

heart, heart disease, heart defect, survey, Canada, heart health, healthcare, health access, health equity, cardiac, congenital heart, congenital heart disease, congenital heart defect, feedback

Français

This survey is now closed.

Thank you for participating in this important survey on access to congenital heart disease care in Canada

https://www.surveymonkey.ca/r/QYQXGC3

A CHD national advisory committee (CHD-NAC) has been convened to collaboratively lead the development of a Canadian CHD strategy and implementation of a CHD action plan. Lead by Heart & Stroke, the CHD-NAC consists of a core group of strategic leaders representing, The Canadian Pediatric Cardiology Association, Canadian Adult Congenital Heart Network, Canadian Cardiovascular Society, Canadian Congenital Heart...

heart, heart disease, heart defect, heart health, healthy living, congenital heart, congenital heart defect, CHD, board, board of directors, volunteer

 

The Canadian Congenital Heart Alliance (CCHA) is looking for its next generation of leaders to fill critical volunteer positions on our national Board of Directors. This elected group supports the work of CCHA and provides mission-based leadership and strategic governance.  We believe that a highly effective Board includes members from across Canada from many walks of life and that this diversity helps to best guide the overall strategic management and stewardship of the Foundation.  The CCHA’s Nominating Committee needs your help to identify Board candidates. We are looking for committed people...

Board member Christelle

 

See why our Board Members support CCHA and its mission.

Christelle Roy-Couillard

I was born with a congenital heart defect called ALCAPA. Although I’ve lived with this my whole life, it was only discovered when I was 26 years old. The fact that I lived well into adulthood without a serious outcome was surprising and I feel blessed to have made it through. Since my diagnosis, I’ve been seeing the team at the Toronto General Hospital Peter Munk Cardiac Centre. I had open heart surgery to repair my anomalous coronary artery on November 24, 2014 and due to complications, required a second surgery...

Bandaged fabric heart in hand image with CCHA logo

Has living with CHD impacted your mental Health? We want to hear from you!

Survey link here www.surveymonkey.com/r/9F2GZPK 

Canadian Congenital Heart Alliance in partnership with MacEwan University are asking how your experience living with CHD has impacted your mental health. Your answers will be anonymous and the data collected through this survey will be used to guide program and resource development, future research, and advocacy tools.
Survey closes November 16, 2020.
 

Stay home save lives COVID19

 

The World Health Organization officially declared COVID-19 a global pandemic on March 11, 2020 with Canada and provinces putting lockdowns in place shortly thereafter. There has been a lot of chaos, confusion and misinformation over the 9+ weeks.

As provinces begin to ease restrictions for the COVID-19 pandemic, it's important to be aware that children and adults living with congenital heart disease (CHD) may be at higher risk for more severe symptoms and
complications.


Canadian Congenital Heart Alliance has created a COVID-19 and CHD tips page.  For important informations, Q&A, resources...

Join the movement - CHD Awareness
 
Be part of a growing movement to increase #CHD Awareness. Join CCHA in the fight!
 
Advocate   CCHA on Facebook  CCHA on Twitter  CCHA on Instagram   @cchaforlife
 
Volunteer   Volunteer with CCHA
 
Donate       Donate to CCHA
 
 
Congenital Heart Disease journal ceases publication

 

IMPORTANT INFORMATION FROM DR.DOUG MOODIE (EDITOR-IN-CHIEF) ABOUT THE DISCONTINUATION OF THE JOURNAL “CONGENITAL HEART DISEASE”

Congenital Heart Disease journal ceases publication

Send your feedback and let Wiley Blackwell publications know that this Journal is vital to the CHD professional community. 

On Social Media: @WileyNews

CHIP is funded by the community. Your donations and sponsorships help your community stay informed and connected.
 

 

Transitioning from pediatric to adult CHD care

We are excited to announce the launch of our revised and expanded Transition information section on our website, which includes an outline of transition timeline recommendations and a tools and resources section to support and educate youth and families during the transition process. Check it out!

General information about Transition and Risks: https://www.cchaforlife.org/transition 

Transition timeline recommendations: https://www.cchaforlife.org/transition-timeline-recommendations

Tools and Resources: https://www.cchaforlife.org/transition-tools-resources

 
In other news, CCHA collaborated...

Pages

Subscribe to RSS - #CHDAdvocacy
Check out how congenital heart disease stacks up against better recognized diseases in Canada! So many affected and so little awareness and funding! Get involved with CCHA, donate, and spread the word about the growing population of of "survivors" so that we can get the care and support we need to live long, healthy lives!

Upcoming

Sorry, there are no posts at this time.