Canadian Congenital Heart Alliance

#ACHD

Transitioning from pediatric to adult CHD care

Transition

Children pass many  milestones growing up, the first day of kindergarten, the liberty of becoming a licensed driver and -going-off-to-college or university, just to name a few. Parents give the necessary “talks” about responsibility, risk and behaviour. These transitions are thought of as rites of passage.

Prepping our youth for entry into adult health care should be no different than transitioning into college, university or into the workforce.  At some point, most individuals will assume responsibility for maintaining and managing their own health. There remains work to do to...

Read our stories of strength, perseverance and hope living with CHD

Nathalie Lacoste-Hofmann's story (CHD and heart transplant story) (CCHA board member) (article written by Robin Roberts for CHD Awareness Week) https://www.healthing.ca/diseases-and-conditions/heart-health/what-it-fe...

Lisa Wright and her daughter Rachael's story (Pulmonary Stenosis) (Lisa leads our Hearts of London/Middlesex chapter) (article written by Robin Roberts for CHD Awareness Week) https://www.healthing.ca/diseases-and-conditions/heart-health/how-i-care...

Jennifer Mulder's story (Tetralogy of Fallot (ToF) with...

 

What is the Beat Retreat?

The Beat Retreat is a fun-filled, four-day weekend for adults with congenital heart disease. You’ll have an opportunity to participate in a mix of traditional camp activities – all geared to your physical ability and comfort level. Equally important, you’ll have an opportunity to make new friends and learn from the experiences of other CHD patients. You’ll also have an opportunity to chat with healthcare professionals in a relaxed and informal setting. In short, it’s a weekend of fun, friends, firsts, and great food.    

A picture is worth a 1,000 words.

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Check out how congenital heart disease stacks up against better recognized diseases in Canada! So many affected and so little awareness and funding! Get involved with CCHA, donate, and spread the word about the growing population of of "survivors" so that we can get the care and support we need to live long, healthy lives!

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