Canadian Congenital Heart Alliance

#1in100

CCHA year in review

Although 2020 was a tough year for us all, we at CCHA are looking back fondly on some of the incredible work we were able to do to enrich the lives of our CHD community members. Thank you to all our donors, members and volunteers who made it all possible!

File Download CCHA Giving Tuesday video _FINAL.mp4 (8.61 MB)

We are looking forward to all that is in store for 2021.

Board member Christelle

 

See why our Board Members support CCHA and its mission.

Christelle Roy-Couillard

I was born with a congenital heart defect called ALCAPA. Although I’ve lived with this my whole life, it was only discovered when I was 26 years old. The fact that I lived well into adulthood without a serious outcome was surprising and I feel blessed to have made it through. Since my diagnosis, I’ve been seeing the team at the Toronto General Hospital Peter Munk Cardiac Centre. I had open heart surgery to repair my anomalous coronary artery on November 24, 2014 and due to complications, required a second surgery...

Holiday Market encore

 

Have you started your Holiday shopping yet? It is about to be that wonderful time of the year!  But this year you can not only find that special item but you can support the Canadian Congenital Heart* Alliance too!   

We had great success with the 1st 'Virtual Holiday Market' for CCHA that we are holding part 2. Beginning November 30 until December 9, 2020 and will feature nine wonderful vendors. Each will showcase their products and share gift ideas, sales and more over the next week. The BEST (besides getting your holiday shopping done) is that a percentage of all sales during this week will be...

CHD Awareness concert - crowd at concert with hands in heart shape

 

CCHA was LIVE with a virtual concert to raise CHD AWARENESS

 

One of CCHA's goals as an organization is RAISE AWARENESS of CHD! As a way to achieve our goal, on November 22nd at 5:30pm EST/6:30pm AST, we teamed up with a group of students from Saint Francis Xavier University to host a FACEBOOK LIVE Concert – Music With Hearts; 1 in 100 Journey!!

 

This event featured some great East Coast talent such as Russ Matthews, Tyler Mullendore, Todd Googoo, and many more! We also have some wonderful talent from individuals who live with CHD such as Shannon Durnan and Joe Bladek!! Also Kyle Tayes and...

Bandaged fabric heart in hand image with CCHA logo

Has living with CHD impacted your mental Health? We want to hear from you!

Survey link here www.surveymonkey.com/r/9F2GZPK 

Canadian Congenital Heart Alliance in partnership with MacEwan University are asking how your experience living with CHD has impacted your mental health. Your answers will be anonymous and the data collected through this survey will be used to guide program and resource development, future research, and advocacy tools.
Survey closes November 16, 2020.
 

Beat Retreat returns to CCHA

Exciting announcement from CCHA and Beat Retreat

The Canadian Congenital Heart Alliance (CCHA) and The Beat Retreat Congenital Heart Camp are proud to announce that they have once again joined forces to support and deliver “The Beat Retreat” camp.

This fun-filled four day event for adults living with congenital heart disease (CHD) will return as a program under the Canadian Congenital Heart Alliance known as the “The Beat Retreat”.

With the Beat Retreat returning as a program of CCHA, it will ensure continued financial support for the camp, allowing for stable and long term growth.  “We are...

Walk of Life 2020

 

Join Team CCHA in the 2020 Virtual Walk of Life! https://bit.ly/WOL2020TeamCCHA

The Canadian Congenital Heart Alliance (CCHA) is happy to be part of this year's VIRTUAL WALK OF LIFE!  Even though we can’t celebrate in person this year, we are provided with a unique opportunity to come together from all across Canada to raise funds to support those living with CHD. By joining Team CCHA, you will be helping to fund important programs and events such as:

  • Awareness materials
  • Camps
  • Conferences
  • Education days 
  • Support initiatives such as Transition Programs, and more!

You will also be supporting...

Join the movement - CHD Awareness
 
Be part of a growing movement to increase #CHD Awareness. Join CCHA in the fight!
 
Advocate   CCHA on Facebook  CCHA on Twitter  CCHA on Instagram   @cchaforlife
 
Volunteer   Volunteer with CCHA
 
Donate       Donate to CCHA
 
 
Transitioning from pediatric to adult CHD care

We are excited to announce the launch of our revised and expanded Transition information section on our website, which includes an outline of transition timeline recommendations and a tools and resources section to support and educate youth and families during the transition process. Check it out!

General information about Transition and Risks: https://www.cchaforlife.org/transition 

Transition timeline recommendations: https://www.cchaforlife.org/transition-timeline-recommendations

Tools and Resources: https://www.cchaforlife.org/transition-tools-resources

 
In other news, CCHA collaborated...
CCHA: A Case to Support the Heart

Help CCHA deliver hope this season

Donate Now Through CanadaHelps.org!PayPal donation

The Canadian Congenital Heart Alliance (CCHA) is the only national organization that supports and advocates for the over 257,000 children and adults in Canadian living with Congenital Heart Disease (CHD).

CHD is  the most common birth defect, affecting 1 in 100 babies born worldwide.  CHD is a general term for a range of birth defects that affect the normal way the heart works, and are present at birth. It requires lifelong, specialized care including many auxiliary needs and challenges such as; insurance, mental health, disability, financial planning...

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Are you an adult with congenital heart diseases? To find a cardiologist with specialized training in adult congenital heart disease, please read for important info.

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