"Thrown into the strange, scary world of critically sick children, heart parents become fierce advocates for awareness." Thanks to Sarah Trainor of CBC for sharing her family's story of their son Ellis' journey with CHD. Ellis' story touches on so many issues that CHD patients and their families face, including the importance of maternal screening for heart defects, the challenges of relocating to seek life-saving medical treatment, and the incredible roles that parents play as caregivers and advocates for their children.
Thank you to Marilyn Gladu, MP (Sarnia_Lambton, ON Opposition Health Critic) for reading our statement in the House of Commons and recognizing February 14th as Congenital Heart Disease (CHD) Awareness Day in Canada.
CCHA is challenging you to find your 1 in 100 Champion!
Share your video, picture or story of your 1 in 100 Champion on social media to help raise awareness for Congenital Heart Disease #CHD. Tag us in your post @cchaforlife on Facebook, Twitter or Instagram using the hashtags #1in100, #CHD, #CCHA. Not on social media - no problem. You can still share your 1 in 100 Champion video, picture or story by emailing them to us at...
Annual Labatt Family Heart Centre Family Conference 2017
Saturday April 22, 2017 8:30am to 4pm
Peter Gilgan Centre for Research and Learning (PGCRL) at 686 Bay St, Toronto
This conference brings children, their families and health professionals together to share information and experiences about heart disease in children. The goal is to enhance parent and family emotional well-being through knowledge exchange, experiential sharing and the development or informal support systems.