Canadian Congenital Heart Alliance

Lost To Care

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If you are an adult and have fallen out of care with an adult CHD cardiologist, you are not alone.

There are over 165,000 adults in Canada living with CHD. It's estimated as high as 77% have been 'lost to care', meaning they are not being followed by a specialized adult congenital heart disease (ACHD) cardiologist. 

To find the closest ACHD clinic near you and get back into care, use our ACHD clinic locator

Congenital Heart Surgeons' Society Data Center
The Congenital Heart Surgeons' Society Data Center takes pride in their research and it would not be possible without the annual participation of the patients and families enrolled in their studies. Please click on the banner to be part of their team and to join their community.


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