Canadian Congenital Heart Alliance

heart health

heart, heart disease, health health, CHD, heart defect, healthy living, exercise, website, ASD, VSD, fontan, ohs, heart surgery

Registration is now open for the 2024 Beat Retreat camp!

Date: September 12-15, 2024

Beat Retreat is a fun-filled, four-day weekend for adults living with Congenital Heart Disease (CHD). At Beat Retreat you’ll have an opportunity to participate in a mix of traditional camp activities – all geared to your physical ability and comfort level. Equally important, you’ll have an opportunity to make new friends and learn from the experiences of others like you livng with CHD. You’ll also have an opportunity to chat with healthcare professionals in a relaxed and informal setting. In short, it’s a...

heart, heart disease, health health, CHD, heart defect, healthy living, exercise, kids camp, virtual camp, chd educcation,website, ASD, VSD, fontan, tetrology, aorta, ventricle, ohs, heart surgery

Join us for our annual Virtual Heart camp on November 23, 2024 organized by the Virtual Heart Connection and CCHA.

Previously for Fontan kids, this year it is open to all kids 7-16 years with any type of congenital heart disease so they can connect with others like them.

For more info and to register, click here: https://forms.gle/tvLcXKCH7fQGNHAM8
 

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Joignez-vous à The Virtual Heart Connection et l'ACCC pour notre Camp Virtuel Coeur Congénital le 23 novembre 2024.

Auparavant ce camp visait les enfants qui avaient des Fontans mais cette année il est ouvert à tous les enfants atteints de n...

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CCHA is excited to announce our newest project -  CHD Unpacked: A podcast about living with Congenital Heart Disease.

This podcast is a safe space to discuss the well-being, lifestyle, psychosocial impacts and unique medical challenges faced by those living with Congenital Heart Disease (CHD). Our episodes will feature physicians, researchers and allied healthcare workers and experts in the field of CHD, as well as those with lived experience.

Be sure to check in the first Friday of each month when we launch a new episode. Some months we will have a bonus episode.
 
We welcome you to our...
heart, heart defect, heart disease, congenital heart disease, congenital heart defect, OHS, #ohs, CHD, #CHD, heart health, education, CHD advocacy, CHD education, CHD awareness, heart disease

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This week is Heart Valve Disease Awareness Week (Sept 11-17).

Many people living with CHD have defects that include the valves in their heart. The 4 valves of the heart are:

Tricuspid valve: between the right atrium and the right ventricle.

Pulmonary valve: between the right ventricle and the pulmonary artery.

Mitral valve: between the left atrium and the left ventricle.

Aortic valve: between the aorta and left ventricle.

heart, heart defect, heart disease, congenital heart disease, congenital heart defect, OHS, #ohs, CHD, #CHD, heart health, education, CHD advocacy, CHD education, CHD awareness, heart disease source https://www.ottawaheart.ca/heart-condition/heart-valve-disease

Valve repair or replacement may be required to treat their CHD. Some types of replacement valves may...

Multiple images of people playing sports and exercising on top of Exercise and CHD title and event details

Exciting event! Virtual Exercise and CHD event for children and families hosted by Virtual Heart Connection through their 'Connecting Caregivers' program.

Register here https://forms.gle/1px4EwXfiayAHVjK9

CCHA's Brenaven Kugamoorthy, a kinesiologist from UofT who has an interest in physical activity for individuals with congenital heart diseases, to give a 30 minute talk on recommendations for exercise programs, different modalities of exercise children and caregivers/parents can do together to meet their demands and capacities. This talk will be mostly targeted towards caregivers/parents...

2021 support for families living with heart defects and congenital heart disease

 

CCHA is excited to look back at some of our accomplishments this year. These accomplishments wouldn't be possible without generous donations and support from our CHD community, we thank you from the bottom of our hearts.

See how your support helps us achieve our mission to advocate for and enrich the lives of people living with CHD through awareness, education, research and support for families living with heart defects.

Your support will help us continue to move forward with our mission – DONATE HERE

Advocacy

2021 House of Commons statement by Karen Vecchio (MP Elgin-London-Middlesex Deputy...

CCHA logo

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Date:       Monday June 19, 2023

Time:       7:30-9:00pm EDT

Where:    Virtual - videoconference and phone

2023 AGM Documents

2023 CCHA AGM presentation  PDF icon Download 2023 CCHA AGM Presentation_Final.pdf (2.02 MB)

2022 CCHA AGM minutes   PDF icon Download CCHA 2022 AGM Minutes.pdf (195.45 KB) 

2022 CCHA Financial Statements   PDF icon Download Canadian Congenital Heart Alliance Dec 2022 - Financial Statements - Final.pdf (282.31 KB) 

2023-2024  Board of Directors   PDF icon Download 2023 CCHA Board of Directors.pdf (309.37 KB)

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Assemblée Générale Annuelle

Date:       lundi 19 juin 2023

Heure:     19 h 30 à 21 h HAE

O...

Multiple images of people playing sports and exercising on top of Exercise and CHD title and event details

Exciting event! Virtual Exercise and CHD event for children and families hosted by Virtual Heart Connection through their 'Connecting Caregivers' program.

Register here https://forms.gle/1px4EwXfiayAHVjK9

CCHA's Brenaven Kugamoorthy, a kinesiologist from UofT who has an interest in physical activity for individuals with congenital heart diseases, to give a 30 minute talk on recommendations for exercise programs, different modalities of exercise children and caregivers/parents can do together to meet their demands and capacities. This talk will be mostly targeted towards caregivers/parents...

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Check out how congenital heart disease stacks up against better recognized diseases in Canada! So many affected and so little awareness and funding! Get involved with CCHA, donate, and spread the word about the growing population of of "survivors" so that we can get the care and support we need to live long, healthy lives!

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