Canadian Congenital Heart Alliance

Recent Posts

News
jennifer
February 7, 2020
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Transitioning from pediatric to adult CHD care

We are excited to announce the launch of our revised and expanded Transition information section on our website, which includes an outline of transition timeline recommendations and a tools and resources section to support and educate youth and families during the transition process. Check it out!

General information about Transition and Risks: https://www.cchaforlife.org/transition 

Transition timeline recommendations: https://www.cchaforlife.org/transition-timeline-recommendations

Tools and Resources: https://www.cchaforlife.org/transition-tools-resources

 
In other news, CCHA collaborated...
News
jennifer
December 19, 2019
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CCHA: A Case to Support the Heart

Help CCHA deliver hope this season

Donate Now Through CanadaHelps.org!PayPal donation

The Canadian Congenital Heart Alliance (CCHA) is the only national organization that supports and advocates for the over 257,000 children and adults in Canadian living with Congenital Heart Disease (CHD).

CHD is  the most common birth defect, affecting 1 in 100 babies born worldwide.  CHD is a general term for a range of birth defects that affect the normal way the heart works, and are present at birth. It requires lifelong, specialized care including many auxiliary needs and challenges such as; insurance, mental health, disability, financial planning...

Canadian Congenital Heart Alliance (CCHA) shares stories of Congenital Heart Disease (CHD) journeys with the CHD community. However, we also want to share and honour those who were lost too soon. We share these stories to help connect people and families with similar experiences, offer support, and emphasize the need for further research and awareness of CHD.

The tribute is shared on social media twice a year. Once at the end of Heart Month on February 28 and again later in the year.

By responding to this form you are consenting to CCHA using your story and photograph (if applicable) for...

News
jennifer
May 21, 2021
0
Applications for Board of Directors positions now open

 

The Canadian Congenital Heart Alliance (CCHA) is looking for its next generation of leaders to fill critical volunteer positions on our national Board of Directors. This elected group supports the work of CCHA and provides mission-based leadership and strategic governance.  We believe that a highly effective Board includes members from across Canada from many walks of life and that this diversity helps to best guide the overall strategic management and stewardship of the Foundation.  The CCHA’s Nominating Committee needs your help to identify Board candidates. We are looking for committed people...

News
jennifer
February 12, 2021
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Illustration of Penelope

 

The Canadian Congenital Heart Alliance is thrilled to announce the launch of a children's book "Penelope goes for her heart checkup".

Follow Penelope - a young girl - as she travels to the hospital for her ‘heart checkup’ with her Heart Team in this beautifully illustrated book for children ages 5-8. 

To learn more and download the book visit https://www.cchaforlife.org/penelope-goes-her-heart-checkup

KIDS ACTIVITY ALERT!!!  To be a part of Penelope's journey, download the colouring page below. Colour Penelope and her Heart Team and take a pic of the completed colouring page, tag us...

News
jennifer
November 30, 2020
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Giving Tuesday December 1

 

Giving Tuesday gives us the opportunity to raise CHD awareness. This year, we are reflecting back on some of our accomplishments, showing how your generous donations and support made all this possible.

File Download CCHA Giving Tuesday video _FINAL.mp4 (8.61 MB)

We hope we can continue to count on you to support our mission to advocate for and enrich the lives of people living with CHD through awareness, education, research and support.

How will you support CHD families and CHD awareness this Giving Tuesday!
 
Advocate   CCHA on Facebook  CCHA on Twitter  CCHA on Instagram    @cchaforlife
 
Volunteer   Volunteer with CCHA
 
Donate       Donate to CCHA
 
 
News
jennifer
February 12, 2020
0
CHD Awareness Week in media

 

Jennifer Michaud - CCHA Board member shares her CHD story on the Marilyn Denis show.

https://www.marilyn.ca/Health/Articles/February2020/Filling-the-research-gap.

You can see her Heart and Stroke interview here

https://youtu.be/5CBy3zmjNAM

 

CTV2 London – Hearts of London/Middlesex chapter of CCHA with Chair Lisa Wright and Owen Gillet – Feb 11, 2020

Owen Gillet shares his CHD story of living with HLHS, diagnosed with a life-threatening congenital heart defect weeks before he was born, and he hopes his story of survival will help others.

Please complete information below to register as a volunteer.

News
jennifer
January 24, 2020
0
Take our survey

We want to hear from you!

We are looking for feedback from teens, young adults and adults and their families about their experiences - past or current in transitioning from pediatric to adult CHD care. 

Below is a link to a brief survey (5 min) to tell us about your experiences.  We wil use your feedback to create educational materials and resources.  We look forward to hearing from you!

Create your own user feedback survey

https://www.surveymonkey.com/r/5QQHRHY

 

 

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Congenital Heart Surgeons' Society Data Center
The Congenital Heart Surgeons' Society Data Center takes pride in their research and it would not be possible without the annual participation of the patients and families enrolled in their studies. Please click on the banner to be part of their team and to join their community.

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