Canadian Congenital Heart Alliance

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News
jennifer
March 23, 2023
0
Fontan, heart, heart defect, heart disease, congenital heart disease, congenital heart defect, OHS, #ohs, CHD, #CHD, heart health, education, CHD advocacy, CHD education, CHD awreness

Artwork above by: Kassondra Krahn @kassondrakrahn www.kassondrakrahn.com

FONTAN EDUCATION DAY 2023

The 2nd annual Fontan Education Day is coming in April.

Connect peer-to-peer with others who have undergone a Fontan surgery and their family members, ask questions, and learn!

To register https://www.eventbrite.com/e/fontan-education-day-2023-tickets-494433894087

Event Date: Sunday April 16, 2023
Event Time: 9am – 12pm (Pacific Time)
Event Location: Online via Zoom
Eligibility: All ages with Fontan surgery

Not able to attend on the day? Register thru Eventbrite link and select “Zoom...

News
jennifer
February 11, 2023
0
Illustration of Penelope

Le Canadian Congenital Heart Alliance est ravi d'annoncer que leur livre pour enfant "Penelope goes for her heart checkup" est maintenant disponible en français "Pénélope va chez le cardiologue."

Suivez Pénélope - une petite fille - alors qu'elle se rend à l'hôpital pour son "bilan cardiaque” dans ce livre magnifiquement illustré pour les enfants de 5 à 8 ans

Pour en savoir plus et télécharger le livre, visitez https://www.cchaforlife.org/penelope-goes-her-heart-checkup

ALERTE ACTIVITÉ ENFANTS !!!Pour faire partie du voyage de Pénélope, téléchargez la page de coloriage ci-dessous. Coloriez...

News
jennifer
February 2, 2023
0
Hands holding multicoloured heart puzzle Congenital Heart Disease Awareness Week February 7-14 Congénital semaine de sensibilisation aux maladies cardiaques Février 7-14 #CHD #CHDAwarenessWeek #HeartMonth #MoisDuCoeur #heart #heartdisease

As we get ready for CHD Awareness Week on February 7 we invite you share our campaign across Canada, sharing personal stories, CHD research, projects and more. We are thrilled for the return of our 5th annual #CanadaLitRed4CHD campaign showcasing monuments across Canada lit red for CHD Awareness as well as our #CHDproclamation from cities coast to coast. Be sure to use our #CCHAweraiseourhandforCHD hashtag to show your CHD support.

To show your support this CHD Awareness Week, download our Facebook and Twitter covers in English and French.

Facebook cover EN

CHD Awareness Week Social Media assets #CHD #HeartMonth #MoisDuCoeur #CHDAwarenessWeek Heart Month Mois Du Coeur #CHDAdvocacy CHD Advocacy CHD Awareness Week Social Media assets #CHD #HeartMonth #MoisDuCoeur #CHDAwarenessWeek Heart Month Mois Du Coeur #CH

Twitter cover EN...

News
jennifer
February 2, 2023
0
CCHA is back on Instagram #CHD #HeartMonth #1in100 #MoisduCoeur #cardiopathiecongenitale #heartdisease #heartdefect #instagram #insta #thegram #CHDawareness

Canadian Congenital Heart Alliance is back on Instagram with our new account @CCHA4LIFE!

You may have noticed we haven`t updated our old IG in some time. We were locked out and sadly unable to recover the account. We are currently in the process of closing down our old page @cchaforlife and we hope you will follow us on this new one.

Please continue to support our CHD community by liking our posts, following our page, and turning on your notifications as you look forward to amazing content this Heart Month 2023!

You can also follow us on:

Facebook: @CCHAforlife

Twitter: @cchaforlife...

News
jennifer
February 2, 2023
0
It's Heart Month image with hands raised for Congenital Heart Disease Awareness #CHD #HeartMonth #1in100 #MoisduCoeur #cardiopathiecongenitale #heartdisease #heartdefect

February is Heart Month! CCHA is so excited to bring you a month full of events, announcements, and most importantly awareness. Raise your hand if you will join us in raising CHD Awareness in support of over 250,000 Canadians living with Congenital Heart Disease.

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C'est l'image du mois du cœur avec les mains levées pour la sensibilisation aux maladies cardiaques congénitales #CHD #HeartMonth #1in100 #MoisduCoeur #cardiopathiecongenitale #heartdisease #cardiopathie #heartdefect malformation cardiaque

Février est le mois du cœur ! Le CCHA est ravi de vous offrir un mois rempli d'événements, d'annonces et, surtout, de sensibilisation. Levez la main si vous vous joignez à nous pour sensibiliser la population aux cardiopathies congénitales afin de soutenir plus de 250,000 Canadiens vivant avec une cardiopathie...

News
jennifer
November 25, 2022
0
Heart, CHD, heart disease, heart defect, congenital, congenital heart defect, birth defect, hole in heart, baby, congenital heart disease, giving tuesday, giving tuesday CA, donate, charity, volunteer, support, give back

FR

November 29, 2022 is Giving Tuesday!

Giving Tuesday is a global movement that started in 2013, dedicated to giving back and acts as the opening day of the giving season! It's a time where we encourage all of you to join together and rally for the Canadian Congenital Heart Alliance. 

Giving Tuesday harnesses the potential of social media and generosity of people around the world to bring about real change in their communities. It provides a platform for CCHA to encourage the donation of time, resources and talents to address the challenges the CHD community faces, with more than...

News
jennifer
October 6, 2022
0
heart, heart disease, heart defect, survey, Canada, heart health, healthcare, health access, health equity, cardiac, congenital heart, congenital heart disease, congenital heart defect, feedback

Français

This survey is now closed.

Thank you for participating in this important survey on access to congenital heart disease care in Canada

https://www.surveymonkey.ca/r/QYQXGC3

A CHD national advisory committee (CHD-NAC) has been convened to collaboratively lead the development of a Canadian CHD strategy and implementation of a CHD action plan. Lead by Heart & Stroke, the CHD-NAC consists of a core group of strategic leaders representing, The Canadian Pediatric Cardiology Association, Canadian Adult Congenital Heart Network, Canadian Cardiovascular Society, Canadian Congenital Heart...

News
jennifer
June 3, 2022
0
Multiple images of people playing sports and exercising on top of Exercise and CHD title and event details

Exciting event! Virtual Exercise and CHD event for children and families hosted by Virtual Heart Connection through their 'Connecting Caregivers' program.

Register here https://forms.gle/1px4EwXfiayAHVjK9

CCHA's Brenaven Kugamoorthy, a kinesiologist from UofT who has an interest in physical activity for individuals with congenital heart diseases, to give a 30 minute talk on recommendations for exercise programs, different modalities of exercise children and caregivers/parents can do together to meet their demands and capacities. This talk will be mostly targeted towards caregivers/parents...

News
jennifer
May 6, 2022
0
heart, heart disease, heart defect, heart health, healthy living, congenital heart, congenital heart defect, CHD, board, board of directors, volunteer

 

The Canadian Congenital Heart Alliance (CCHA) is looking for its next generation of leaders to fill critical volunteer positions on our national Board of Directors. This elected group supports the work of CCHA and provides mission-based leadership and strategic governance.  We believe that a highly effective Board includes members from across Canada from many walks of life and that this diversity helps to best guide the overall strategic management and stewardship of the Foundation.  The CCHA’s Nominating Committee needs your help to identify Board candidates. We are looking for committed people...

News
jennifer
February 4, 2022
0
heart defects, heart disease, charity, CHD, heart month, heart, congenital heart defect, congenital heart disease, birth defect, 1 in 100, chd awareness, chd advocacy

 

CCHA is partnering with 3D Heart Project.

Congratulations to Dr. Carolina Escudero and her 3D Heart project team for winning the $10,000 viewers choice prize from WCCHNs 2022 BoostUP competition!

CCHA is excited to annouce we have partnered with the 3D Heart Project, an innovative cardiac project whose vision is to improve understanding for children, adults and their families of their heart defect and diagnosis by creating an open and freely accessible educational resource using 3D models. Education and access to CHD resources for individuals and families and trainees is vital to being engaged...

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Check out how congenital heart disease stacks up against better recognized diseases in Canada! So many affected and so little awareness and funding! Get involved with CCHA, donate, and spread the word about the growing population of of "survivors" so that we can get the care and support we need to live long, healthy lives!

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