Canadian Congenital Heart Alliance

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jennifer
June 2, 2024
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heart, heart disease, health health, CHD, heart defect, healthy living, exercise, website, ASD, VSD, fontan, ohs, heart surgery

Registration is now open for the 2024 Beat Retreat camp!

Date: September 12-15, 2024

Beat Retreat is a fun-filled, four-day weekend for adults living with Congenital Heart Disease (CHD). At Beat Retreat you’ll have an opportunity to participate in a mix of traditional camp activities – all geared to your physical ability and comfort level. Equally important, you’ll have an opportunity to make new friends and learn from the experiences of others like you livng with CHD. You’ll also have an opportunity to chat with healthcare professionals in a relaxed and informal setting. In short, it’s a...

News
jennifer
June 2, 2024
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heart, heart disease, health health, CHD, heart defect, healthy living, exercise, kids camp, virtual camp, chd educcation,website, ASD, VSD, fontan, tetrology, aorta, ventricle, ohs, heart surgery

Join us for our annual Virtual Heart camp on November 23, 2024 organized by the Virtual Heart Connection and CCHA.

Previously for Fontan kids, this year it is open to all kids 7-16 years with any type of congenital heart disease so they can connect with others like them.

For more info and to register, click here: https://forms.gle/tvLcXKCH7fQGNHAM8
 

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heart, heart disease, health health, CHD, heart defect, healthy living, exercise, fundriaser, chairty, website, ASD, VSD, fontan, tetrology, PFO, coartation, aorta, ventricle, ohs, heart surgery


Joignez-vous à The Virtual Heart Connection et l'ACCC pour notre Camp Virtuel Coeur Congénital le 23 novembre 2024.

Auparavant ce camp visait les enfants qui avaient des Fontans mais cette année il est ouvert à tous les enfants atteints de n...

News
jennifer
May 17, 2024
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heart, heart defect, heart disease, congenital heart disease, congenital heart defect, heart health, heart surgery, pregnancy, heart condition, OHS, VSD, ASD, hole in heart, volunteer, board of directors

DFR

Deadline extended to June 16, 2024

The Canadian Congenital Heart Alliance (CCHA) is looking for its next generation of leaders to fill critical volunteer positions on our national Board of Directors. This elected group supports the work of CCHA and provides mission-based leadership and strategic governance.  We believe that a highly effective Board includes members from across Canada from many walks of life and that this diversity helps to best guide the overall strategic management and stewardship of the organization.  The CCHA’s Nominating Committee needs your help to identify Board...

News
jennifer
May 17, 2024
0
heart, heart defect, heart disease, congenital heart disease, congenital heart defect, heart health, heart surgery, pregnancy, heart condition, OHS, VSD, ASD, hole in heart

 

CCHA is excited to announce our newest project -  CHD Unpacked: A podcast about living with Congenital Heart Disease.

This podcast is a safe space to discuss the well-being, lifestyle, psychosocial impacts and unique medical challenges faced by those living with Congenital Heart Disease (CHD). Our episodes will feature physicians, researchers and allied healthcare workers and experts in the field of CHD, as well as those with lived experience.

Be sure to check in the first Friday of each month when we launch a new episode. Some months we will have a bonus episode.
 
We welcome you to our...
News
jennifer
April 13, 2024
0
heart, heart disease, health health, CHD, heart defect, healthy living, exercise, fundriaser, chairty, website, ASD, VSD, fontan, tetrology, PFO, coartation, aorta, ventricle, ohs, heart surgery


 

We are fundraising to raise funds to save CCHA's website. Every year, CCHA’s website gets more than 10,000 visitors, giving people the critical information they need to know about living their best CHD life. But by July 15, there will be no website. The platform hosting CCHAforLife.org is no longer supported and, without intervention, our website will be taken offline entirely.

 

Help us raise $5,575 to finish development of the new website. Long term we intend to build the 'Go To' destination for CHD information and resources.

Use this link to donate

News
jennifer
November 1, 2023
0
heart, congenital heart disease, heart disease, heart defect, congenital heart defect, heart surgery, open heart surgery,

Virtual Congenital Heart Choir

Are you a child living with congenital heart disease in Canada? Do you like to sing? Are you looking for something fun to do inside over the long Canadian Winter?

Why not join our CHD children's choir! Brought to you by musicians from the Virtual Heart Connection (VHC) in association with the Canadian Congenital Heart Alliance (CCHA), you will learn a medley of songs and sing together with other CHD kids.

Sessions will start with vocal warm-up exercises followed by learning the song. Participants will have an optional chat time with each other at the end...

News
jennifer
September 15, 2023
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heart, heart defect, heart disease, congenital heart disease, congenital heart defect, OHS, #ohs, CHD, #CHD, heart health, education, CHD advocacy, CHD education, CHD awareness, heart disease

FR

This week is Heart Valve Disease Awareness Week (Sept 11-17).

Many people living with CHD have defects that include the valves in their heart. The 4 valves of the heart are:

Tricuspid valve: between the right atrium and the right ventricle.

Pulmonary valve: between the right ventricle and the pulmonary artery.

Mitral valve: between the left atrium and the left ventricle.

Aortic valve: between the aorta and left ventricle.

heart, heart defect, heart disease, congenital heart disease, congenital heart defect, OHS, #ohs, CHD, #CHD, heart health, education, CHD advocacy, CHD education, CHD awareness, heart disease source https://www.ottawaheart.ca/heart-condition/heart-valve-disease

Valve repair or replacement may be required to treat their CHD. Some types of replacement valves may...

News
jennifer
July 25, 2023
0
Beat Retreat, heart, heart disease, ACHD, CHD, heart defect, congenital heart defect, congenital heart disease, 1 in100, camp, disability, archery, canoeing. health

Registration is now open is cancelled for 2023!

Unfortunatey the 2023 Beat Retreat camp has been cancelled due to low applications. However, we will be holding camp in 2024 so keep watch for more details this fall. 

Don't miss out on the opportunity to see old friends and make new ones!

The Canadian Congenital Heart Alliance (CCHA) along with the Beat Retreat is happy to present the 14th annual Beat Retreat camp September 7-10, 2023. 

What is the Beat Retreat?

The Beat Retreat is a fun-filled, four-day annual retreat for adults (18+) living with congenital heart disease (CHD). You’ll have an...

News
jennifer
May 2, 2023
0
heart, heart defect, heart disease, congenital heart disease, congenital heart defect, OHS, #ohs, CHD, #CHD, heart health, education, CHD advocacy, CHD education, CHD awareness, heart disease, cardiopathie congenitale

FR

The Canadian Congenital Heart Alliance (CCHA) is looking for its next generation of leaders to fill critical volunteer positions on our national Board of Directors. This elected group supports the work of CCHA and provides mission-based leadership and strategic governance.  We believe that a highly effective Board includes members from across Canada from many walks of life and that this diversity helps to best guide the overall strategic management and stewardship of the Foundation.  The CCHA’s Nominating Committee needs your help to identify Board candidates. We are looking for committed...

News
jennifer
March 23, 2023
0
Fontan, heart, heart defect, heart disease, congenital heart disease, congenital heart defect, OHS, #ohs, CHD, #CHD, heart health, education, CHD advocacy, CHD education, CHD awreness

Artwork above by: Kassondra Krahn @kassondrakrahn www.kassondrakrahn.com

FONTAN EDUCATION DAY 2023

The 2nd annual Fontan Education Day is coming in April.

Connect peer-to-peer with others who have undergone a Fontan surgery and their family members, ask questions, and learn!

To register https://www.eventbrite.com/e/fontan-education-day-2023-tickets-494433894087

Event Date: Sunday April 16, 2023
Event Time: 9am – 12pm (Pacific Time)
Event Location: Online via Zoom
Eligibility: All ages with Fontan surgery

Not able to attend on the day? Register thru Eventbrite link and select “Zoom...

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Did you have heart surgery as a child?
Are you an adult with congenital heart diseases? To find a cardiologist with specialized training in adult congenital heart disease, please read for important info.

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