Canadian Congenital Heart Alliance

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News
shelagh
November 12, 2015
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7th annual Beat Retreat brings adult CHD patients and professionals together

What has 36 hearts, 72 legs, and more enthusiasm than you can shake a stick at? Give up? The Canadian Congenital Heart Alliance’s 7th annual Beat Retreat, held September 17-20, 2015.

The Beat Retreat is a fun-filled, four-day annual event for adults with congenital heart disease (ACHD).  This year’s retreat – the biggest to date – drew together 27 adult congenital heart disease (CHD) patients, two caregivers, and seven health care professionals from Southern Ontario, Quebec and even Alberta.

While at camp, attendees...

News
shelagh
October 3, 2015
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Would you like to create a wallet-size health passport in case of emergency? You can now use the SickKids MyHealth Passport to create a CHD-specific form with all of your pertinent health and contact information. Just click HERE and use the drop-dow menu to select "Congenital heart disease" and then fill out the information and keep it in your wallet or purse.

News
shelagh
April 21, 2015
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Middle-aged congenital heart disease survivors may need special care 

American Heart Association Scientific Statement 

 

Statement Highlight

  • For the first time, the American Heart Association has made recommendations for treating people older than 40 with congenital heart disease.

Embargoed until 3 p.m. CT/4 p.m. ET Monday, April 20, 2015 

DALLAS, April 20, 2015 — For the first time, the American Heart Association has issued recommendations for healthcare providers treating people older than 40 with congenital heart disease.

“People born with congenital heart disease are living longer and fuller...

News
shelagh
April 6, 2015
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A Prescription for Change – Making Affordable Medicine a Priority

by Alison Lawton

When we launched the Access Our Medicine Initiative on World Health Day last year I didn’t know if anyone would respond.

We knew that the price of medicine was rising for life-changing medicines with devastating consequences for everyone, around the globe. We learned of people choosing between food and medicine, being pushed into poverty and even dying because they couldn’t afford medicine they needed.

But I also knew that for many people the issue of access to affordable medicine just isn’t top of mind until...

Need something fun and exciting to look forward to this spring and help out a worthy cause at the same time?  Why not come out to walk, run or dance for Team CCHA through beautiful Sunnybrook Parklands at the Ontario Science Centre, and raise money for two great charities!  Join Team CCHA!

This year the Walk of Life will be returning to the Ontario Science Centre located in Toronto, Ontario.  This year’s event features SIX different programs for people of ALL ages.  Participants have a choice of:

  • 3km or 5km Walk;
  • 1km family friendly stroll (recommended for strollers and wheelchairs);
  • 5km or 10km...
Walk of Life
Video
Anonymous (not verified)
April 3, 2014
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News
Pixel Sweatshop
August 23, 2013
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The British Heart Foundation has released figures that reveal a huge 83% drop in the number of children dying from congenital heart disease. News story from Australia’s The Reporter:

FIXING a child’s heart is one the most intricate operations that the NHS performs.

Surgeons who do it must operate on tiny babies whose hearts are hardly bigger than walnuts and whose veins are little more than a hair’s breadth across.

But despite the intricacy, it is something that surgeons, and in particular NHS surgeons, have quietly been getting better at for decades.

Today the British Heart Foundation has...

News
Pixel Sweatshop
March 7, 2013
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March 7, 2013

Boston, MA - The annual number of hospitalizations for congenital heart disease among US adults increased more rapidly than hospitalizations among children over a recent 12-year period, new research shows [1]. Between 1998 and 2010, the frequency of hospitalizations among adults admitted for congenital defects has grown twice as fast as that for children, according to the new report.

As a result, annual adult admissions are approaching those of children, with adults now accounting for 36.5% of all congenital heart defect admissions. “The observed trend is likely due to a number...

News
Pixel Sweatshop
December 27, 2012
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THIS IS A MOMENTOUS ANNOUNCEMENT:

The American Board of Medical Specialties (ABS) announced the creation of physician certification in ACHD on December 5, 2012. The announcement of an ACHD subspecialty certification in the US nails ACHD down as an equal partner among other subspecialties. This decision is a landmark and a milestone in the young history of ACHD and transitions ACHD into a new era!

This announcement is available at http://www.cardiosource.org/News-Media/Publications/Cardiology-Magazine/...

This new ACHD subspecialty acknowledges efforts from multi-society stakeholders including...

News
Pixel Sweatshop
December 5, 2012
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This article was posted on the theheart.org website on December 4, 2012.

Cincinnati, OH – Children and adolescents with pacemakers and implantable cardiac defibrillators (ICDs)—and their parents—suffer from a poorer quality of life than both healthy children and patients with mild forms of congenital heart disease, a new study reveals [1]. Whether lives could be improved with the use of psychotherapy needs to be assessed in this population, say Dr Richard J Czosek (Cincinnati Children’s Hospital Medical Center, OH) and colleagues in their paper published online December 4, 2012 in...

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